Register today for meetings and webinars hosted by NAFTNet affiliated centers, nonprofit organizations, and government organizations.
Join MAF’s FDA-recognized Externally-Led Patient-Focused Drug Development (EL-PFDD) meeting on July 20, 2026—a free hybrid event uniting patients, caregivers, clinicians, researchers, industry, and FDA representatives. This important convening will highlight real-world experiences and unmet needs in severe alloimmunization, including fetal anemia, intrauterine transfusions, high-risk pregnancy care, delivery, NICU experiences, and long-term outcomes. Don’t miss this opportunity to hear directly from families and gain insights to inform clinical care, research, and future therapies.
The workshop aims to drive progress in prenatal care by identifying key research gaps in screening, diagnosis, and treatment, while advancing innovation and patient-centered approaches to improve outcomes.
Featuring four expert-led sessions across the fetal care continuum, discussions will cover emerging therapies for genetic diseases, advances in prenatal diagnostics, evolving fetal interventions, and clinical decision-making from prenatal through postnatal care.
This collaborative effort brings together multiple NICHD branches focused on pregnancy, pharmacology, developmental biology, and intellectual and developmental disabilities.