Government Agencies & Websites

• National Institutes of Health
• Office of Rare Diseases (a branch of the NIH)
• National Institute of Child Health and Development - the NIH center related to all things fetal
• Centers for Disease Control and Prevention (CDC)
• Health Canada - the official site of the Canadian Department of Health
• Canadian Association of Paediatric Health Centres
• Canadian Institutes of Health Research

Non-Government Agencies and Clinical Research Sites

• The March of Dimes
• The MOMS trial: Management of Myelomeningocele Study (completed in 2011)
• Eurofoetus: a European research consortium that ran the first randomized study on laser treatment for TTTS (also at www.eurotwin2twin.org)
• International Fetal Cardiac Intervention Registry (IFCIR)
• Action Medical Research for Children - (a British medical research charity that supports TTTS research, among other rare diseases research)

Support Groups and Non-Profit Organizations

• Fetal Hope Foundation - (formerly devoted solely to TTTS, now a support group for all fetal disorders)
• The Twin-to-twin Transfusion Syndrome Foundation
• Cherubs, the support group for congenital diaphragmatic hernia
• Birth Defects for Children, Inc.
• CHD Care Compass - (For families affected by a diagnosis of congenital heart disease in pregnancy)
• CarryMe Health - (Peer Support & Mental Wellness for Fetal Care Families)