Welcome to NAFTNet

NAFTNet (the North American Fetal Therapy Network) is a voluntary association of medical centers in the United States and Canada with established expertise in fetal surgery and other forms of multidisciplinary care for complex disorders of the fetus. The NAFTNet initiative is funded, in part, by the National Institutes of Health (NIH).

This site offers help and information to parents and families of affected fetuses. It also allows medical professionals to seek the help of colleagues in the field, collaborate with other fetal treatment units and participate in clinical research. More…

NAFTNet coordinates research projects by any of its member centers - see the Research Highlights at right. NAFTNet also sponsors outside research projects by other organizations (below). Contact the individual research organizations for further details.

ISPD Meeting

The annual International Society for Prenatal Diagnosis meeting was held in Washington DC, July 13-15, 2015. Click on the link to see the program highlights and other information.


fetal repair of Myelo-meningocele (fMMC) Registry

NAFTNet hosts an international registry for in utero repair of spina bifda (myelo-meningocele). For more information, please contact information@naftnet.org.


IFCIR

NAFTNet is also a sponsor of the International Fetal Cardiac Intervention Registry (IFCIR), which regroups all centers that offer in utero procedures for heart anomalies (including treatment for hypoplastic left and right heart syndrome). More information at www.ifcir.org


Stage I TTTS RCT

NAFTNet is co-sponsoring an international Randomized Controlled Study of the Treatment of Stage I Twin-to-twin Transfusion Syndrome. Full description of the study, including inclusion and exclusion criteria, is available at ClinicalTrials.gov.


FAST Therapy Trial

The "Treatment of Fetal Atrial flutter & Supraventricular Tachycardia (FAST Therapy)" trial is a multi-center Phase III open label clinical randomized controlled trial and registry. For more information, contact edgar.jaeggi@sickkids.ca

Research Highlights

The goal of NAFTNet is to foster collaborative research in fetal medicine. Click here for a list of scientific publications by NAFTNet. In addition, you can find the abstracts of recently published articles on fetal therapy from the world literature - click here or go to Papers of interest in the What is Fetal Medicine menu.

 

Members of NAFTNet can access current research protocols and use this site to participate in research studies. Find out more about current research projects in fetal medicine, or contact NAFNet to find out how to become a member and participate in research activities.